Empowered Hands for P.A.N.S.
Supporting families, raising awareness, and supplying care packages
for children and teens recieving IVIG for PANDAS/PANS
OUR BRANCHES
MI, USA
ABOUT US
Empowered Hands for P.A.N.S. (EHP) is a registered 501 (c) (3), non-profit organization. Our mission is to spread awareness about P.A.N.D.A.S./P.A.N.S. and provide support to children and families with P.A.N.D.A.S./P.A.N.S.. We do this by providing P.A.N.D.A.S./P.A.N.S. children and teens with care packages through IVIg treatment. We also provide emotional support to children and teens with P.A.N.D.A.S./P.A.N.S. as well as their parents and siblings.
Empowered Hands for P.A.N.S. was created in January 2013, in Michigan, United States. It was founded by, Mary Rose Crombez, a 14 year old girl at the time, who has struggled with P.A.N.D.A.S. since she was 7. To learn more about Mary Rose Crombez and her story, visit "P.A.N.D.A.S./P.A.N.S. Stories".
In less than 2 years, Empowered Hands for P.A.N.S. has made and delivered 50 care packages and homemade fleece blankets. Empowered Hands for PANS has also hosted more than 5 fundraising and support events and 1 P.A.N.D.A.S./P.A.N.S. awareness day event. EHP currently has the funds to make 75 care packages and blankets and host a big awareness day event in October 2015.
In October, 2014, a new branch of Empowered Hands for PANS was created, the ACE Bandage Brigade. During IVIg, the hospital wraps the patient's arm with Coban. The Coban is very uncomfortable to children and teens with P.A.N.D.A.S./ P.A.N.S. because of their sensory sensitivities. The ACE Bandage Brigade hopes to provide children and teens with ACE bandages in their care packages to use instead of the Coban.
Our goal is to be able to attend and have a booth at educational conferences in order to inform doctors and medical personnel about P.A.N.D.A.S./P.A.N.S. and raise awareness. We are also hoping to help host a P.A.N.D.A.S./P.A.N.S. conference in Michigan or the Great Lakes region. Another goal is to be able to monetarily support families getting IVIg treatment for P.A.N.D.A.S./P.A.N.S. by helping pay for some or all of their IVIg medical expenses.
Empowered Hands for P.A.N.S.' president and founder is Mary Rose Crombez. She has P.A.N.D.A.S. and wanted to help other children and families with P.A.N.D.A.S./P.A.N.S.
Mary, Dale, Katie, and Emily are Mary Rose's parents and sisters. They have been huge helpers with Empowered Hands for P.A.N.S. including helping with events, fundraising, awareness, support, and making care packages and blankets.
Laurel is another teen with P.A.N.D.A.S. She has made 25 fleece blankets in the past 3 months. Without her, Empowered Hands for P.A.N.S. would not have been able to deliver as many care packages as we have. We call her our Blanket Goddess.
Laurel's parents have been big supporters as well. They have helped with events, awareness, and making care packages and blankets.
Ian has been a huge promoter for Empowered Hands for P.A.N.S. He has always been there to help out and be supportive. He has attended almost all of EHP's events and loves to spread awareness by wearing his P.A.N.D.A.S./P.A.N.S. shirt.
Marge has been a great advocate for Empowered Hands for P.A.N.S. She helps out with events and making care packages and blankets. She has always been very supportive. She has connected Empowered Hands for P.A.N.S. with 3M ACE Medical Supply Company in order to be able to provide PA.N.D.A.S./ P.A.N.S. children with ACE bandages for IVIg. She has also written to NBC Nightly News in hopes of getting Empowered Hands for P.A.N.S. on their "Making a Difference" segment.
